Support groups for cause of deafness

CHARGE Family Support Group

Support, information and advice for families with children with CHARGE Syndrome.


CMV Action

Support, information, contacts and advice for families whose children are born with congenital CMV.


The only UK-wide charity providing advice, information and support to parents of all disabled children – no matter what their health condition. Provides freephone helpline for parents and carers and networking for parents, and campaigns to improve the quality of life for families with disabled children.

Meningitis Now

Meningitis Now, formed after Meningitis UK and Meningitis Trust merged in April 2013, is the UK’s largest charity fighting the disease through vaccine and preventative research, raising awareness and providing emotional, practical and financial support to sufferers and their families. Freephone helpline: 0808 80 10 388.

Action Plan Guides

Action Plan guides, brought out by the NDCS for deaf children, originally commissioned by NHSE


Sense is the leading national charity that supports and campaigns for children and adults who are deafblind. They provide expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them. They also support people who have sensory impairments with additional disabilities, such as Usher Syndrome.


Formerly called Me too & Co, Skylarks exists to provide “relief of children with additional needs due to physical or learning impairment, emotional or behaviour difficulties or any permanent or temporary illness, in the London Borough of Richmond and surrounding areas, and the provision of information, practical advice and support to their families, carers and siblings”. We aim to help children who are disadvantaged by their health problems which restrict their access to activities, and by communication difficulties which delay their development. These children are often isolated and are unable to attend mainstream nurseries or playgroups due to lack of specialist facilities or lack or understanding by others.